New ALS Treatment Gives Patients Hope

Don’t Hesitate. Your Life is at Stake.

Any time I read about something that remotely resembles a new ALS treatment, I immediately try to figure out how to get my hands on it. I feel like a human Pez dispenser at this point.

With all that is being shoveled into me (My ALS protocol) albeit, at my own doing, I will most likely be well preserved like beef jerky before I actually cure myself. This new ALS treatment, however, has some of the greatest potentials of any therapy out there.

CuATS-What?

Touted as delivering copper directly into damaged mitochondria, CuATSM is a synthetic molecule developed by Collaborative Medicinal Development demonstrated a slowing of progression, improved respiratory and cognitive function after twenty-four weeks. Press release here. Clinical trial (NCT04082832) here.

Do not confuse CuATSM with the over the counter copper supplement, which has proven to be toxic and no benefit to ALS.

Where to Find This New ALS Treatment

This news is promising, but obtaining this compound proved more difficult than other medicines not commercially available in the US.

Fortunately, there is a company that somehow struck a deal with the manufacturer and is offering a group buy for anyone willing to pay the $1270 fee in bitcoin for a ninety day supply.

After speaking with someone who has participated in previous group buys, he shared that the experience buying required a lot of trust but the company did deliver as promised.

He also shared that his wife, who had recently completed a round of CuATSM, had no side effects and also had a role in halting her progression. That was sufficient enough to convince me to sign up and pay the fee for a new ALS treatment.

A shotgun approach to self-medicating is not without risk. Assuming no off-target effects, medical speak for something wonky happening, I’m interested in what else this drug is capable of besides slowing progression. Most of the other drugs I’ve found and take purport to have that capability already.

Trust Required. Against My Better Judgment.

Zero consideration was given to the potential and obvious danger to purchasing an unknown powder, from an unknown source, over the Internet. In my healthier years I would have waived a dismissive hand at the notion.

But at this point, you could sell me dog shit in a capsule if you gave the slightest indication it could work. So, bring it on, you shady scam artists!

I received the ninety-day supply in mid-December. To keep costs down and presumably avoid any unnecessary entanglements with customs, the medication was packaged in 1.1 gram clear plastic zip lock bags, and two micro scoops.

Recipe for Success

The instructions said to add 72 mg of CuATSM to 100 mg sodium gluconate and take that in the morning with a little juice, before breakfast.

Easier said than done. These are very small quantities that are difficult to handle. We’ve also noticed that this powder is prone to static electricity. We found a way around the static by adding a small amount of regular sugar to the mix. This enables all the CuATSM powder to come out of the container without leaving any behind.

For handling purposes, we’ve simplified the powder issue by combining the full 1.1 grams of CuATSM with 1.5 grams of sodium gluconate, and shook vigorously, ensuring equal distribution throughout.

172 mg of the mixture is getting given to me in the morning, 30 minutes before the rest of my medications.

Wrapping Up

Having only taken this new ALS treatment for less than one month, it is too early to make a determination on the benefits. Fortunately, there are no side effects. I will update again towards the end of this first batch.

New ALS Treatment Gives Patients Hope 1

Hey, I'm Jeremy.

Hey, I'm Jeremy.

I help motivated people with disabilities improve their lives and overcome challenges.

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Comments

2 Comments

  1. Fred Schreiber

    I’ve done the same thing with the CuATSM that you’ve done: I add the same weight of sodium gluconate as you do directly into each bag that the CuATSM is packaged in, then shake vigorously to distribute the two. Additionally, I then add about 5.5 gms of sugar to the bag and shake vigorously again to homogenize the mixture. I then accurately weigh out 1/15th of the total weight in the bag into each of 15 capsules (there are 15 doses in each bag). The reason for the sugar is as follows: I previously tried weighing out 0.172 gm of the CuATSM-sodium gluconate pair into 7 small gelatin capsules for a week at a time, but the powder was still fluffy and easy to spill, so losses were annoying. Plus, even a small spill was a large percentage of the CuASTM present now lost. I determined how much sugar I could fit in a capsule in addition to the CuASTM-sodium gluconate pair with some room to spare (depends on the size capsule, obviously). With the sugar as an inert carrier, the 3-way mixture was easier to weigh out, easier to add to the capsules, small spills meant less CuASTM was lost, and spills were easier to recover because the 3-way mixture was granular instead of fluffy, with no static electricity.

    Reply
  2. debbie schlossberg

    helps having a chemist in the house!

    Reply

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